A List Maker's Life: Too Sweet Not to Share

Wednesday, February 1, 2012

Too Sweet Not to Share

I was gently reminded yesterday that it had been almost a month since I updated Gabe's blog and quite a bit changes for a toddler in a month.  It's true.  Since I had so much to say I thought I would cross post his update here on ALML for those of you who started reading way back in May 2010 when we first shared about our beautifully made babe.

Gabe is quickly adding words to his growing vocabulary.  Although we may be the only ones that recognize a majority of them he is beginning to use more phrases and is having fun exploring animal sounds.  As anyone who has spent time with him in January will tell you, "Woof!" is his best friend and his best word.

{sweet talking}

In the last few weeks we have been experimenting quite a bit with Gabe's diet in hopes of finding the right combinations for his digestive issues.  Just when we think we are on to the right balance of natural supplements we are tipped off to new research that suggests that maybe the right balance isn't right after all.  Thankfully Gabe has no complaints about eating. anything. ever.  and he cooperatively gobbles whatever is offered.

Last week we visited our ABM therapist a few times.  It is incredibly exciting to see the progress he is able to make in such a short amount of time when he is working with her specifically starting with the movements that he is already confident with.  I have embraced the idea of only working on movements he is already using independently.  I have defended the controversial, and somewhat experimental, stance on not using AFOs with our therapist and orthotists. We have had several conversations with our in home therapist where we do not see eye to eye on what Gabe should be practicing. I had quite a light bulb moment last week about Gabe's amazing progress and capability. When explaining my frustration to Rene about Gabe's IEP goal of standing for 25 minutes she asked me what our therapist would do about that goal if Gabe was walking by the next time she saw him.  It was just the reminder I needed {again} that despite Gabe's diagnosis I need to dream beyond the limits.

Oh... about that MRI!  Our last neuro appointment was in August and the MRI was in October.  There seems to be inadequate conversation between our doctor here and the doctor in Boston, and neither of them is willing to speak out independently other than to say "It looks ok."
Okay, no syrnx? Okay, how is the Chiari?  Okay, are the vents growing?  Okay, what is the next step?  We obviously still have a lot of questions.  Last week I decided to call for my own copies of the MRI films and radiology reports and Dr. and Dr. Gabe's Mommy & Daddy took our own peek at "OK."  From our untrained eyes we felt there were some good surprises and some expected bummers.  But, overall it will be okay:) We did call for a follow up with our neuro in GR and they were able to get us in for February to discuss our questions after seeing the films.

This week Gabe started a Parent and Child group session at the Conductive Learning Center.  It is a group program with one of his best buds.  We entered the two week session with the hopes of learning how to implement their proven techniques for bladder and bowel training for children with spinal injuries.  Although I  am glad to be learning the strategy, we are already seeing other benefits of participating in the class.  In the first three days I have really appreciated the chance to see Gabe: interact with another child his age, see empathize with each other as one or the other of them cries, mimic his peer, become increasingly more comfortable with his instructor, follow directions, stick up for the things he doesn't want to do, participate in small group fine motor activities, paint, play, experiment, serve his own snack, drink out of a big boy cup, copy movements with his mouth and belly, chase his "woof", shoot hoops, and be downright determined!  I have to admit I have never had as many reservations about trying something with Gabe as I did about this session, but I already feel  the effort to be there with him daily is worth it!  Speaking of needing constant reminders, this class is reminding me{again} on the many pieces of Gabe beyond the gross motor skills we spend so much time focusing on.

However, tonight we bought him a sturdy walk behind toy.

{sweet walking}

No words. Just tears, smiles, and thanks to Him who is able to do more than we ask for or dream of - infinitely.  To Him be the glory in Gabe's life forever.
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  1. Katie
    thanks for the update...we miss you all and can't wait to spend some time with you! After all Korra has not been able to kiss on either boyfriend and a while and she is waiting for her chance..as well as mine! Love to see Gabe's progress and know he is truly a miracle and blessing to all of us who know him as well as are you and Kevin!

  2. What a "beauty full" blessing and privilege to be able to see Gabe talk and walk. Thank you for sharing the joys of precious Gabe.


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