A List Maker's Life: Spina Bifida Kids Worldwide Day of Prayer

Wednesday, October 20, 2010

Spina Bifida Kids Worldwide Day of Prayer

Did you know?

"October is Spina Bifida Awareness Month, and we SB moms have on our minds, more than anything, the precious unborn babies who are so often terminated before they even have a chance to prove their lives have meaning and value to the world.

To say that 50% of all Spina Bifida affected pregnancies are terminated is a conservative estimate. But we SB moms know there is no reason to terminate a baby because of SB. Our children are beautiful and intelligent gifts from God who have every opportunity to live full, productive, and totally normal yet extraordinary lives.

October 20 is Spina Bifida Kids Worldwide Day of Prayer. We believe in the power of prayer, and we are excited at the prospect of many people praying at the same time for these unborn babies. We moms can make a difference individually and collectively, but that is nothing compared to the change that can come if we have God on our side." { For more info }

This weekend as we waited for our hospital discharge instructions, I spent time reading through the extensive notes in our file documenting this pregnancy, delivery, and time in the NICU.  I was struck by something specific I read in a note from the high risk specialist to my OB.  Tucked in the middle of a letter full of medical jargon was the following, "Patient was counseled regarding termination and refuses based on religious beliefs.  She attends XYZ church" {of the crazy people who hope in something brighter than doctor diagnosis.} {On that note: What the heck does the name of my church have to do with my decision?  But, that's a whole 'nother soapbox...}

Thinking back I was reminded that even my own doctor threw out the T-word in his first three sentences when explaining our original ultrasound. In fact, I was conditioned to dread my prenatal appointments as they gave repeat opportunity for defending my rationale for carrying my sweet baby to term.  The doctors' tone, during my time in each office, was often that of a dreary funeral procession instead of the joyful ballad of new life.

We are so thankful for our joy in hope, patience in affliction, and trust in a perfect plan for our baby boy.  We recognize that he was knit together just the way he was intended to be.

This little man, "who will likely have breathing problems, endure multiple surgeries, spend extended time in the hospital, need a feeding tube, have cognitive impairments, never walk, have kidney problems, have no control of his bladder and bowels, worst case...worst case...worst case..." is our own little miracle. We will never venture to imagine our lives without Gabe.

He has already brought our family closer together. Introduced us to an amazing new community of love and support. Encouraged us to lean on our faith.  Solidified our relationships with some amazing friends.  Brought hundreds together in prayer.

Because of him, and Him, we will join in prayer again today.
For unborn babies.
For kids with spina bifida.
For all children.

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Related Reading:
Leigh from Our Little Gibblet
Dancing in the Rain's "God Doesn't Make Mistakes"
Testify, written for The Journey, by my dear friend Lisa.
For every mountain there is a miracle


  1. Gabe has already achieved so much in his life by touching the hearts of so many people around the world. The world is a better place because of Gabe. Thank God that you were chosen to be the parents of Gabe. What a gift he is.

  2. Beautiful post, it brought tears to my eyes to think of all those mothers being scared or bullied in to a choice they would not have otherwise made. Still praying for your sweet little Gabe as he continues to grow and thrive.

  3. I am definitely praying for Gabe and for all babies with Spina Bifida. I will be sharing this and want you to know I think you guys are awesome. A lot of people do believe the worst case scenario and it doesn't always turn out that way. They are people too and it kills me how people can just throw them away because they are not perfect in their eyes. They are perfect in God's eyes and that is what matters.

  4. What a neat picture of the world's perspective vs. God's redeeming power. Thanks for sharing!

  5. I will never judge someone for the personal decision they make but I will also say that what the doctors said and seemed to treat you is frustrating to me. Even if it was all the worst case scenrio it is your decision and you want to enjoy the pregancy to your full extent.

    EVEN if I knew at the start of my pregnancy that my daughter would die at the end. I would have done it anyway cause it was my special moments with her, and holding her for that one day was well worth it.

    Its my decision and I dont care who judges it, all people make decision on what they feel they can handle and we need to be supportive and loving in all ways. I am so glad you didnt let those doctors get you down and look how wonderful and beautiful Gabe is..what a beautiful decision you made!

  6. Oh Katie...Your post just moved me to tears. I am so thankful that little Gabe is home and in the loving arms of his wonderful family. I am sure you will experience God's grace over and over again as you raise him and your other children.

  7. Beautiful, Katie. Thanks for sharing your heart and your journey with us.

  8. As the tears swell..... This is exactly why God gave you Gabe. What a brilliant and beautiful post!!

  9. I can't believe that was in your chart! Well, I guess I can. How insane!

    Gabe is so precious!

    On a side note, I was waiting for the doctor to come in once and grabbed the chart off the door to read. They left the door open. Well, a nurse walked by and grabbed it from me and said it was illegal for me to read it. I wanted to ask if they were going to call the police, but I decided against it. LOL! Why is it illegal to read my own file?

  10. God is sooooooooo good. rereading this after loving on that sweet little boy and hearing him talk, seeing him smile and laugh... there are no words


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