A List Maker's Life: Knocked Down, But Not Out

Friday, October 1, 2010

Knocked Down, But Not Out

This week has held its share of ups and downs for our family and our little boy wonder.

Gabe's back showed signs of either an infection or a necrosis at the site of his incision. When the Dr. saw him early in the week he ordered antibiotics to help ward off the infection if that was indeed what was the leaking at the incision was fat that had died and was melting away (by the way I'd love to know how to catch some fat necrosis of my own;).

This week also brought elevated bilirubin levels forcing Gabe to stay in his incubator under phototherapy lights all day. He did okay with this, although having his eyes covered and being on his belly made him more vocal than the nurses were used to him being.

Yesterday was a good day as he was taken off the phototherapy routine and his IV was taken out. We held him on our lap and had good visits with his eyes open.

However during the night his incision opened significantly. It has been determined that the tissue in his back died and therefore the stitches had nothing to hold together anymore. Gabe was taken back into surgery to have his back re-repaired. This is quite a setback as it means his healing is now starting over at day #1.

We knew before this all began that we would have ups and downs and that we would be held through them all, but we are still feeling a bit defeated as each day passes and it becomes more difficult to not have our family of 6 together. Yet, another successful surgery is now behind us and it's time to get back up again...

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  1. Well, congrats on that gorgeous little boy! I'm just seeing your blog. I have a 4 year old boy named Nate. You can see what he's up to on my blog: whatnatesaidtoday.blogspot.com. Anyway, I'm sorry to hear about the infection. The NICU is HARD. It was one of the most traumatic times of my life. It seems like its lasting forever, but before you know it, it will be a distant memory and Gabe will be home. Just keep hanging in there and take it one day at a time. Thinking about you!

  2. praying for infection to stay far from Gabe, that he may heal so quickly that the doctors will be amazed by our God!!!! Praying for you and your husband as your are surely having heart ache. Love you sweet sister in Christ!!!!

  3. Praying that He will be able to provide you with comfort and strength. Also praying that Gabe recovers with no more complications from this latest surgery.

    Gabe is not far from my thoughts and always in our families prayers.

  4. I know how hard it is to have your baby in the NICU for a long time. It seems like you'll never leave but there will be a day when the NICU will be a distant memory. Gabe is beautiful and he will be a strong little guy because of all the trials he is facing. Your family is in my prayers. I hope we can get our little guys together since they're so close in age. Feel free to email me with any questions or ANYTHING! laurenleighmiller@gmail.com

  5. Oh Katie - praying for your sweet Gabe to be healed and home with you soon. How frustrating that must be! Keep on looking up and remember He already knows the plans He has for Gabe. Love you, friend!

  6. I am so sorry about the downs but so happy for the ups. Gabe is doing amazing and you guys are too. Everything will be more normal before you know it and your whole family will be together. I keep praying and praying for all the go well. Working on Gabe's little gift too!

  7. Katie and Kevin and Family, May God give Gabe a speedy recovery and may He give you rest and peace. You are in our thoughts and prayers.

    <3 Rika Diephouse

  8. I am so sorry he had to go back into surgery. I hope he heals quickly and you can all be a family in your home again soon!

  9. I will be praying for his quick healing and that you can be together as a famly unit soon!


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